In 2004 I became (at age 45) left-sided paralyzed by a stroke.
Something totally unexpected happens to you. You're not prepared. Especially on the effects of the stroke.
I had a deep valley to climb, anything, but you have to relearn everything, talking, swallowing, chewing, moving, walking, dressing, cooking (for the lucky among us that the weather might all learn ... ) and you continue moving in a wheelchair.
Then the next phase of your life, goodbye.
Say goodbye to your loved one home, your car, photography ( I miss this the most), your job and sometimes friends.
I had a stroke that was not recognized as such, even though I called my doctor and said to him I had a brain hemorrhage. Their I was fobbed off with "oh no, it's not a stroke, it's a migraine attack or an anxiety attack BUT A STROKE NO THAT IS NOT POSSIBLE". While I was having it: blood did flow under my skull (this feels warm and wet, very frightening). I went outside to get some are air(got nauseous, and went insiteagain. In panic I called my neighbour to come over. My neighbor who came to me and who later phoned the doctor again. They first brought me to the Canisius Hospital; The NEXT DAY they brought me to another hospital Radboud Hospital (specialized), where they operated me.
To many mistakes were made.
CORRECTION: in 2021 I found out that CWZ did operate me but only placed a drainage. radboud removed it but I kept having headages and my brainflued dropped out of my skull., Again a new drainage wich was placed wrong. etc etc.
People claimed that in 2004 they did not know so much about braininjury, but after 1 day in Radboud they know what to do? Seems to me that CWZ did not had the expertize
2 Infarcts, over which severe cramps in the brains because the blood that was there.
The second cramp disabled, me.
I also had meningitis (my family had to fear the worst), 5 procedures (including at least three anesthetics) in seven weeks and a sixth after six months because a drain was inserted incorrectly. (somone said at the seeing the scan.) On paper the drain was moved.
HONOUSTLY I DID NOT TOUCH IT
I had constantly pain, vomited because of that 3 liters bile in my stomach. I was told by the nurses in the clinic that I was a poseur, while I vomited green bile in my food. And one time they came with the dirty plate asking if I wanted to eat further.
The question is if someone else as what I have been through had come so far, so please do not complain.
t is unfortunate that sometimes an individual may consider that I have done not my best of rehabilitation.
I am not waiting for this
But each stroke runs differently.
The worst of it: are spring changes in the character (I admit I have them), most patients find that they themselves have NOT undergone it.
After that the chronic fatigue.
Of course, much more happened. But this is my story in a rapid speed.
I have more one support than the criticism.
Meanwhile I have a very good solid relationship, which I now despite my disability makes me happier now if I ever was when I was healthy.
Don't feel sorry for me . But support is allowed.
LIVA'S saying: "You should never feel so sorry for yourself, that others piss you off" !!!!!!!!!!!!!!
What is important to know about us.